Janelle Sargent Greenlee Question: After a week straight up with Bunny all night, I have to ask my CMV parents...those of you with CMV sleep issues, what do they look like? Neither of my girls have ever had them, but as I rule things out, I just want to hear how your child acts during the night when they have sleep issues...Help :)
about an hour ago · ·
Dawn Patterson
James is 2.5 and has never slept. We are finally on the list for a sleep study. I think he has sleep apnea. No meds have worked for him yet. He wakes up repeatedly during the night with a jerk and gasping, followed by crying I hope you get some sleep soon! No sleep sucks - I am a walking zombie!
about an hour ago
Lori Tuck Ewing
Audrey just doesn't sleep. She will lay in bed and kick her feet for 6 or 7 hours without ever falling asleep unless she has her melatonin. She is also very restless in sleep. We've never had problems with apnea or seizures, but falling asleep is a huge issue for us. Before melatonin, 3 hours of sleep was a good night...now we get at least 6. Our only problem now is that if she wakes up, she'll almost never go back to sleep - even if its the middle of the night.
about an hour ago
Janett Lynch-Craft
my son will be 10 next saturday, he takes clonidine, and we still have issues with him going to sleep...there are times he wakes up in the middle of the night. then there are times he goes straight to sleep, and doenst want to wake up in the morning! he used to sleep with us, finally got him out of that, but he would constantly kick us, pull our hair, inter-twine his legs with mine.
about an hour ago
Lacey McCauley
Leah who is 2 goes to sleep easily around 1030 every night but by 2 or 3 she is up for the night or at least until 7 or 8 in the morning. She takes no nap during the day either. Leah however plays in her crib and just laughs and plays. I will lay awake for hours just listening to her play. She doesn't want out and she doesn't cry. I think she ... See Moreactually enjoys the time to her self. Lol I think so far I have been pretty lucky with her sleep issues. Maybe try keeping her up late and see what happens. Good luck!
about an hour ago
Janelle Sargent Greenlee
In 6 years, I've never had ANY sleep problems with her. She's slept like a log since she came home from the hospital...I can't tell if it's something underlying or an emerging sleep issue in general...time to rule things out...
about an hour ago
Mary Peters King
Katie's sleep issues come and go. On the nights she can't sleep we keep the tv on with closed caption. We have always had a night time routine and try not to stray from it. If she gets into bed past her regular time it seems she is just unable to go to sleep. She says her legs twitch. It is better now that she is almost 10 but when she was younger we had a many a night where we didn't sleep. She may go for a few weeks with no issues and then several nights in a row unable to sleep.
59 minutes ago
Christy Cothron
Zach has always had trouble going to sleep and staying asleep. When he was 5 we did a sleep study and he has restless legs but they didn't really find anything else. We do now take atarax to help him get to sleep and stay asleep but we only started that at about 6 1/2. He still has times where it's VERY hard for him to go to sleep, his legs will... See More bother him or he just plain lays there and doesn't go to sleep....it's pitiful...he'll say, "Mama, my legs won't stop moving"...so most of it is the restless legs, but also some sensory integration issues too....maybe as Bunny is growing and maturing she's more aware of surroundings and it's effecting her sleep pattern, you know how she's interpreting things around her, maybe she's thinking about her day and it's keeping her up ????
55 minutes ago
Crystal Thomas
Trenton is in bed between 8 and 8:30 and usually does't fall asleep till 10 or 11 and is back up at 6:30 or 7. He usually wakes up 2 to 4 times a night. This is on a good night. lol
38 minutes ago
Lori Look Grant
We have also had sleep issues with Lexie. She either won't go to sleep or will fall asleep and then wake up in the early morning hours and stay awake. We have now trained her to stay in her room when when wakes up, but in the past she would come out of the room and get into the kitchen and frig and has broke bottles of sauces, etc. One time it ... See Morewas BBQ sauce and she cut her foot on the glass. We have since locked up the kitchen and frig at night to prevent this if she does get out. It's another reason why we don't like to travel with her or visit family because she keeps us all up! At least at home she is contained in her room. The other issue is that when she stays up playing all night she falls asleep at school. She will take naps at school daily. When she sleeps it is very deep and you can't wake her easily. She never seems to sleep more than 4 hr at a time. We have used melatonin and clonadine in the past but nothing worked. Now we just let her have her own schedule because that's just the way her body works. We're tired of fighting it!
34 minutes ago
Stacey Gier Halbgewachs
Braydon is on an extremely strict bedtime schedule. Bath @ 7, Blues Clues then read a story @ 7:30, in bed with his mickey mouse and seahorse and blanket 8. he will lay in there and talk to mickey mouse until 10 or 11 then is asleep until 6:30 or 7 the next morning. I have had to fight to get to this point... and it was not Braydon that I was ... See Morefighting... it was Daddy! But now that we are on the strict schedule Jon is seeing that it is making a HUGE difference. Braydon still has nights that sleep just won't come and so we sit in the glider and he sings to me while I sleep! I do know that when he goes to his grandparents for the weekend that he does not sleep for them... but they also don't follow the schedule... they are super great but just don't get it! They see how "normal" Braydon is and have basically written off the CMV. This again is another issue that I am fighting. I see how Braydon compensates when he can't do something the same way his brothers can. We have never used any type of medicine to help Braydon sleep... we just roll with it and hope that I am able to get in a nap the next day!
17 minutes ago
Michelle Belanger Van Meter
Abby (almost 3) gets in bed at around 8 PM and we have to lie with her until she falls asleep - can be minutes or hours(usually by 10 she is sleeping); she usually wakes up 1-2 times at night for us to change her position - she tries to roll the best she can but gets caught in the sheet/blankets.
12 minutes ago
Michelle Belanger Van Meter
I should also add that we did have increased sleeping problems, where she was constatly awake/upset/thrashing, just prior to her having her 1st seizure - in hindsight, we think she may have been having some small seizures; after her 2nd seizure, she was put on meds and had a sleep study which showed abnormal electrical activity in the brain, but the Keppra was preventing these from becoming a seizure...
9 minutes ago
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