Tuesday, February 17, 2009

For the good doctor

Hi Dr. Demmler,

I just posted to the CMV list-serv about our 3.5 yo son Elliot. My recent concerns are related to progressive hearing loss. I've read recently about a study you were involved in that compared SNHL in symptomatic and asymptomatic children. I was hoping you could help me by answering a couple of questions.

1. What determines if a child is symptomatic or asymptomatic? What are the symptoms (mom's CMV symptoms pre-baby)?
2. Our child gradually (complete loss in rt ear by age 2) lost his hearing in one ear. The other remains healthy (testing again next Wednesday). Does the loss, and progression of loss vary and fluctuate? Of course, we are hoping his loss is unilateral...I thought we were out of the risk zone but it doesn't seem to be the case.
3. What causes the progressive loss? Does it have anything to do with the shedding of the virus when reactivated?
4. WHat can you tell me about Glanci--?
5. Do you know of a doctor in the New Orleans area with a strong interest in CMV? Should we consult regularly with a virologist?

Any information you can give would be helpful.
Emmy
Mom to Elliot (3.5)

1 comment:

Erin said...

Good job.

love you.