Saturday, January 12, 2008

To Elliot, who is Two and Five Months

Well, my boy, when you were close to coming, your dad intimated to me that he was hoping for another girl. Ana's long lashes and curls had long since enchanted him, and I don't know if he could imagine such an intense love being truly distinct from his first girl. When you burst into our world on August 2, 2005, we didn't know how much our lives would change because of you, and we didn't fully understand how we could find more love inside of us, and how that would grow exponentially. But Elliot, if there is one thing about you, it is that you have the power to bring tremendous amounts of joy, and to draw love out of those that you meet.

Right now, you're crazy for The Wiggles, especially the mind-numbing, completely catchy tape we have in the car. You'll complete the last word in each line, like a cloze exercise, and move your head back and forth in a dreamy way, or clap and shake excitedly to the music. Your favorite toys are music makers: your Christmas keyboard, horns, train whistles, drums...and of course, objects never intended to be musical instruments like forks and tables, tubes, and pencils. You draw the music out of the world; you make our lives like a song.

You love to hide, and your Christmas rocket is the best place for that. You loudly announce, "I hiding, " and disappear behind a stream of giggles. You can't resist peering out at us, and love the expectation of being found. Being found is a reward for us both! We get to hold you and laugh, and you enjoy the ruse.

One of our favorite games is "cut the pickle" when you put your two pointer fingers together, and we use our pointer to break the fingers' bond. Next comes "tickle, tickle." That just cracks us all up. Any fun will surely come with the request "again!" and we indulge you until you're done with that bit, and move on to the next adventure.

I've considered renting you out to Merry Maids, but the truth is, your clean-up ventures usually yield more mess than clean. You "wash the dishes" while I cook, use your personal vaccuum when we're buzzing the louder version around the house, sweep, use the dustpan, and "wipe" away the messes that you see and make. And of course, when piles of laundry are heaped in neat stacks, you quickly make them into the more exciting mound of clothes, just right for, what else? Hiding.

You work hard to keep up with the big sister. If she's climbing a tree, you want in. If she riding her bike (it's tall, and shiny, with streamers) you can't be bother with the push toy. Now you're telling us, "Turn" and fully expect that because you're becoming such a wordsmith, there's no reason why you can't, say, climb and cross the monkey bars.


It's a good thing she's always looking out for you. You two are really best friends. You disappear into her room, and I'll find you both having a noisy tea party, wearing cat ears and pink capes. She loves to read to you, and shares with you so readily. You are sad when she is off with Tita, or a friend, and look for her out the front window, calling her name. When she hears you in the morning, on the rare day that she is up first, she runs to your crib, and you both lie under the blanket, lots of giggles emanating from you. In her recent games of Princess, and I'm getting Married, you are the prince, or the husband. She talks about marrying you when she grows up.
You are speaking in such long sentences now. Over the Christmas break, you said, "I want to go with Morgan," and demanded, "I want more kisses!" You repeat everything, and enjoy learning the names of our world full of stuff. The Moon is one favorite. As is the Train.

You've become a Two Year Old. You want things for yourself. You want a turn. You want it now. You won't take no for an answer. This has yielded a whole new set of facial expressions that we've never seen. Namely, Angry and Sad. I know that you must have felt these things before, but honestly, you've mostly been Happy and Charming. We're excited to see you developing these other emotions too.


Hugs and Kisses. You're full of them, Elliot. And you give them freely to people. Several times a week, some mom in your classroom will share a sweet encounter of you seeking them out for a hug or a kiss, and sometimes, I find them happily held captive with you on their lap. There is a real power in your hugs, and I have often felt completely unburdened after an Elliot Special.

You are a piece of my soul. I cannot imagine a deeper love than the one I have for you and Ana. What I see between you and your dad brings me to tears when I let myself fully feel it. You are two sides of the same coin. It's no doubt that your sweet, gentle temperment comes from Kevin. You both have the same vigor balanced with a genuine acceptance of people as they are.

You have some rituals that solidify this bond. Sitting on the front stoop in the morning, you with sippy, he with Earl Grey. Nightly tickle-fests of at least 15 minutes long. Your belly laugh should be bottled and given to the depressed. (The best part of this one is the "delayed tickle" that Dad does, and your cracking up before even being touched). Dad shops incessantly for you (Gap online is his favorite). Sometimes the style and design of his purchases looks a lot like what he's wearing, and you look so alike, it must seem intentional. Dad gives you horsey-rides around the house whenever you say, "Ride." Who needs an amusement park? Dad is 24 hour rough-and-tumble fun.

He's often said to you, "I thought I wanted a little girl, El. How could I have known?" Your daddy would do anything for you. I have to admit, I am in awe of the bond I see between you. Your dad is so enamored of you that he can barely speak of you, and your newest high-jinx, or latest accomplishment without becoming dewy himself.

You LOVE to read, and ask for your favorite books by name. Right now they are "Goodnight Kisses," "Daddy Loves Me," and "Horton Hatches the Egg." That one is a little long, but you are just as happy to laugh with me about this enormous elephant parked on a nest in a tree.

You're growing and changing in leaps and bounds, and have changed so many of us in such a short time. Unlike most of your peers, your story includes an element few of us know at age 2: WORK. To hear the challenges stacked against you could be overwhelming: Cerebral Palsy (lovingly known as CP), unilateral deafness, low oral tone, ocular muscle deficits. But the power of your spirit trumps all these scary names, Elliot. You are a tremendous fighter. Your loving therapists are among your many friends.

Ms. Chris, your PT, spends twice her alloted time with you each week. Both your eyes light up when you see the other. And you immediately say to her "Play!" Yes, she makes your work tremendous fun, and could fill the world with her belief in you. During the summer, she meets you for therapy in the pool. She is an angel to us, and a playmate to you. Chris has shaped our parenting and calmed so many of my fears by simply saying, "Just look at him, Emmy."

And between your OT, Speech, Special Instructor, and mornings at Br1ght school, you've got a busy schedule. But nothing is going to keep you for what you want to do. Right now, you're making tremendous gains in using your left and right hand together. You're clapping along to music, and using your hands for fingerplays. You "bring lefty to the party" on command, now, and work hard to open and close it as the situation demands. Counting has helped in this regard, and we're now saying, "Two hands. You have two, Elliot." And you look at that hand, and watch it move, as if you were controlling a puppet, and then, as it obeys, you smile so proudly and cheer yourself.
You're cheering so loudly. Can you hear us, Elliot? We're saying, YAY! Elliot. We love you Elliot. You amaze us, Elliot.

Thank you for being exactly who you are, Elliot. We love you. Being your Mama is such a gift.

Ana on Slurping

Mama, a slurp really has two parts:

A suck and a kiss.

See? ***sluuuuuurp******

Yes, dear. I can find a kiss in most of your imaginings.

Thursday, January 10, 2008

Morning Sickness

Ana was up all night throwing up...literally vomitting about once and hour, usually after complaining that her stomach hurt. I was marginally worried that she might have an appendicitis, but given that lil' brother had vomitted that day before, I thought we'd just call her pediatrician in the am.

When I "woke up" I had the feeling that can only be described as morning sickness, at least my version where I feel like I need to throw up all day, but can't. When I went out to buy diapers, I had to resist the temptation to buy a pregnancy test. I must have what Ana and maybe El have...but the thought of being pregnant definitely fired my alarms in a way that it never has. Maybe this false alarm is meant to help Kevin and I make a decision about whether or not to expand the family. We've been dancing around it for a while, but my response to my own nausea seems to reinforce what I think has been back there for a while: I don't think I want to have another baby.

I've been trying to figure this out as we've been selling the kids' baby equipment off on craigslist. I was working through it and felt I'd made a decision, when Kevin expressed the possibility of another child in our brood at Starbucks waiting for a chai. I still am not sure about what I want. Part of me is ready to have some self back: sleep, clothes without stains, time, thinknig about my own goals... And yet, we enjoy our little people so, and sharing in their lives and growth has made us greedy? for more of that love.

I'm sure we'll have the conversation again soon. But for now, let's say I'm hoping I puke all night and then it's done with.

In any case, a call to the doc ensured me that we were looking at little more than a yucky 24 hour virus. After a suppository, Ana threw up only once more, but took a 5 hour nap at mid-day.

Here's to hoping we're all back to our version of normal tomorrow.

Wednesday, January 9, 2008

Mystery Bug

Mystery Bug, Mystery Bug
My kids just threw up on the rug.
My son has the energy of a slug.
Oh Mystery Bug, Mystery Bug.

It seems that you are always near.
I'd love to kick you in the rear.
Oh Mystery Bug.

Tuesday, January 8, 2008

Carnival Time!

I can't believe it's only 20+ days til Fat Tuesday. We had a blast last year, and I can't wait for the Greatest Free Show on Earth.

To add to the excitement of shouting for trinkets with old friends and new, there's the Krewe of Abeona, rolling down Oak Street, February 1st at 10 am.
With this year's Queen: Ana!!!
This is perfect, given that dress up is her favorite game dujour.



And who else should accompany her for this once-in-a-lifetime event but her good friend


King Will!!!!


Here are the two at the drawing of their names:

I can't wait!

Broke(n)

Over the course of the year, I've really struggled with things not functioning properly or breaking, and learning to live with that. Examples:
  • Our "new" roof leaking everytime it rained, and subsequently ruining the ceiling that took Kevin quite a while to seal and repair everytime we were assured that the ceiling was fixed.
  • Our main bathroom has been out of commission for nearly a year. This initially "quick" project yielded rotten joists and it's own share of mystery leaks (and subsequent siding repairs). I've been bathing the kids in the spare bathroom (which is next in line for a remo) shower. Kids + shower = misery.
  • Mystery loud rattle in Volvo worthy of a Car Talk impersonation. Coupled with the falling fabric ceiling and the "new" stapled-down interior leather, this car brings me way down.
  • Random cosmetic swipe on the Toyota by a well-meaning but hysterical student.
  • Recent Driver's Side mirror smashing by another driver down Oak Street on same car.

And Kevin and I are officially at Ground Zero. His recent fender bender in the Volvo (same crap car from bullet number 3) brought our savings down to $100. This, from our pre-K savings account of $20,000. Between paying down our debt, increased cost of living (including homeowners insurance), income vs. expenses, and childcare for two (with a generous discount) this is where we find ourselves in 2008.

And so, when Elliot Pulled Down the Shower Hose in the Crappy Shower, it had all the pyschological makings of a Complete Crash and Burn on my part. But what could I do? My two naked kids were soapy and wet and cute. The shower was shooting a high-pressure stream reminiscint of the National Park Service's facilities at Big Bend (Erin) that I described as " a thousand poison darts being shot at one time." So I ran to the kitchen and got a pitcher, which instituted Bucket Baths. This novelty brought lots of giggles and praise from Ana that I couldn't be too woe-is-me about it all. And since then, I can't help but think about Honduras.

As I child, until about age 16, I spent my summers in Honduras at my Tia Maria Teresa's house. Her grandchild was a year or two older, so the built-in playmate in my cousin Lupe was really all I needed for a wonderful summer. But I remember my tia's bathroom with almost the same fondness of hiding under the mango trees with Lupe. Her bathroom was the size of our kids' rooms put together, and the shower could have easily fit 10 people. I remember the vanity with the round mirror and the cold face cream (Nivea) ever present. I remember loving that there was furniture in there...a table and a couple of chairs. And in this cold and opulent (to me) setting, I remember enjoying the two plastic garbage bins in the shower full of water. The "muchachas" would fill one with warm water before bathtime, and I used to love filling bowls with water and pouring them over me, as I sampled the many St. Ives products that lined the high tile walls. The feeling was quite decadent, even without running water.

And so, in our broke(n) state over here, I'm remember that the challenge of being broke is to find more creative ways to have a wonderful life. And that's where we are right now.

So you'll have to excuse me. After I figure out how to repurpose my costume trunk into a Mardi Gras, I've got to take a shower.

Neurology Update

Elliot had his 6 month Neurology visit today. This is usually the appointment I dread the most...maybe it's the residual pain from our initial visit, or the lenghty wait room wait (usually 2 hours, then another hour in the actual room) or the fact that despite being a Children's Hospital, CH doesn't have wait rooms designed with children in mind, unless a TV is supposed to count. Or maybe it's El's cynic of a neurologist, although the more I learn about CMV, and the more I watch and learn from El, the more I realize his obligation to paint the picture of El's future with all of the possibilities...

The good news is our visit today was actually pleasant. We waited a mere 10 minutes (his first appt of the day), and about 20 in the room. The nurse who weighed, measured, and took El's blood pressure was a sweetheart, and gave him a zillion stickers. And our visit with Dr. Wong was pretty comprehensiveand positive. He seemed enthusiastic to see Elliot, and noted his growth and progress with, dare I say, optimism. Some of what we learned today:
  • The loss of Elliot's hearing in the right ear was viral (not due to brain damage incurred in utero), and he has likely shed the virus (as determined by our pediatrician as well); therefore, it's unlikely that he will lose the hearing in his left ear. This doesn't effect our "testing every 3 months til he's 3" plan, but it's certainly good news.
  • The generally moderate tone that we see in El's left hand and foot from the cerebral palsy may have the tendency to tighten as El gets older and goes through rapid growth spurts. It's important for us to keep him loose, and keep stretching him out. His PT who came to school this afternoon thought that this was really a non-issue.
  • We only have to visit the neurologist once a year now because El is progressing so nicely! Yay! This is good news. We'll keep up with the preventative and observation visits with our other specialists, but I'm glad to cross an appointment of the list.

On our way out the hospital, we made appts for our 3 month hearing follow-up and the second opinion on the opthamology visit. I'm really hopeful about this visit. Each visit lasts between 2 and 3 hours because he comes in to observe the eye pre-dilation, and schedules the other parts of the exam after that. This is a standard practice, people! He's already better than our current guy, and we haven't even seen him yet.

We still have a visit with Thing Number 2 about El's eyes next week. We'll see what he thinks, but I've already kind of written him off. Does anyone out there know the protocol in seeking patient information for a second opinion? I'd like to know how to do this without any wierdness.

In other El news: it's likely Mr. Smarty Pants will be kicked out of the school for the deaf. He's meeting all their goals for him and has so much speech that they've dropped doing signs with him. This semester's goal was for Elliot to use three word sentences. He's at 5, with some wonderful subject-verb-objects, like: "I want more kisses," and "I want to go with Morgan." It's funny how we receive this news. I'd be happy for him to stay until he's five, but him not needing the services is supposedly a good thing.

And he's beginning his annual evaluation tomorrow. This process usually requires 3 visits of 3 hours with an objective evaluator (Battel test). In the month after that, we can expect the evaluation from the school system which will be trickier. Qualifying medically for services and qualifying in the school system are two separate things. The school system will only provide services that are necessary for El to be successful in a school setting. For example: Unless the high tone on his left side affects his ability to hold a pencil, and participate in the classroom, he won't receive services.

Another tricky thing: I tend to "low ball" El's abilities with the evaluators and doctors. I want to hear what the bad news might be, and I always want to get as many services as possible. This doesn't mix well with Proud Papa, who's so proud and inspired by our guy that he has a hard time not painting his abilities in rose. In any case, the evaluator comes often enough to make her own observations.

More news next week about these other visits.

Friday, January 4, 2008

One Year Ago

I'm thinking of you today, Helen, and working to learn the lessons of your life:
-joy
-exuding a peaceful spirit
-engaged and loving parenting
-one million opportunities to be creative over the course of the day
-choosing work that you enjoy, that inspires you
-sharing smiles
-and I am sure this would be among them: forgiveness.

I'm thinking of you Paul and Francis, and wishing you peace.