Poor little guy can hardly hold down Pedialyte. He had his "big" hearing test tomorrow. The 1 year follow-up ABBR...they sedate him for about three hours, and attach electrodes that can somehow detect the range of functional hearing. It's scary and hard...we had tried the less involved test with him responding to external stimuli. Is it just me, or does it seem inappropriate to expect even a typically developing 18-month old to sit still and wait for Sponge Bob to light up while mom and dad sit silently behind you?
All of this to get an accurate measure for his hearing aide. Which is a whole saga in and of itself...audiologist disagreeing with speech therapist...passive aggressive comments about the other back and forth. Can someone just tell us what's right for Elliot? I really should know better. Parents of children with special needs have no excuse for not being on top of all the current research, and need to be prepared to advocate for the best for their child. Our support team has been such a gift to us since all of this started. I didn't expect these kinds of debates until Elliot aged out of early intervention at age 3...
So the test is rescheduled. And the new debate begins between speech therapist and pediatrician about whether or not Elliot needs a "Swallow Study." How can we disagree when someone enters the possibility into our heads that our son "may be slowly aspirating?" What if we were living in a place with no health care? Would we be better off running our restaurant on the beach? Too many voices today.
ARGGGHHHHHHHHHHHHH
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